Our ALS Family Playbook:
Activities to Help Our Children Cope
For children and their families
where a family member has been diagnosed with ALS (Lou Gerhigs
Disease). This book includes parent's guide as well as over 50
pages of activities to encourage communication among family members and
to help prepare children for the inevitable loss of a loved one.
52 pages, ISBN 0-9652410-3-3, ©2003,
What Professionals are saying about Our
ALS Family Playbook:
"It's a must for families with young
children who are coping with ALS. This sensitive approach to
helping children understand and respond appropriately to a very serious
and eventually fatal illness is a tremendous resource for everyone in
the ALS community. The book is designed for children 12 and under,
but can be adapted for older children and even adults who are struggling
with the impact of ALS on family life and personal relationships.
Included in the book are many excellent activities to help children
identify and express their emotions during the journey with ALS,
including plays, arts and crafts, and writing suggestions. The
guide for parents and the workbook for children will be quite helpful
for successful living with ALS. I highly recommend this book as
part of a library for your ALS community, as well as providing it to
every family with younger children."
Susan Constantine, Executive Director
The ALS Association of Georgia, Inc.
"Our ALS Family Playbook is an
invaluable resource for hospice professionals and parents concerned
about children impacted by terminal illness. Sharon Rugg's use of
metaphoric play and creative storytelling is a stimulus for children to
express their deepest feelings and concerns. As a hospice worker,
I use this resource in my work and am grateful that it exists.
Kateri Mielnicki-Simmons, LCSW, LCM
Hospice Social Worker